The burden of X-linked retinitis pigmentosa (XLRP) on patient experience and patient-reported outcomes (PROs): findings from the EXPLORE XLRP-2 study

Parmeggiani, Francesco; Weber, Michel; Bremond-Gignac, Dominique; Daly, Avril; Denee, Tom; Lahaye, Marjolein; Lotery, Andrew; Paudel, Nabin; Ritter, Markus; de la Rua, Enrique Rodriguez; Rotenstreich, Ygal; Sankila, Eeva-Marja; Stingl, Katarina; Van Denderen, Jacqueline; Pungor, Katalin

dc.contributor.author	Stingl, Katarina
dc.date.accessioned	2025-12-29T10:39:40Z
dc.date.available	2025-12-29T10:39:40Z
dc.date.issued	2025
dc.identifier.issn	0950-222X
dc.identifier.uri	http://hdl.handle.net/10900/173657
dc.language.iso	en	de_DE
dc.publisher	London : Springernature	de_DE
dc.relation.uri	http://dx.doi.org/10.1038/s41433-024-03546-8	de_DE
dc.subject.ddc	610	de_DE
dc.title	The burden of X-linked retinitis pigmentosa (XLRP) on patient experience and patient-reported outcomes (PROs): findings from the EXPLORE XLRP-2 study	de_DE
dc.type	Article	de_DE
utue.quellen.id	20250630000000_02185
utue.publikation.seiten	578-585	de_DE
utue.personen.roh	Parmeggiani, Francesco
utue.personen.roh	Weber, Michel
utue.personen.roh	Bremond-Gignac, Dominique
utue.personen.roh	Daly, Avril
utue.personen.roh	Denee, Tom
utue.personen.roh	Lahaye, Marjolein
utue.personen.roh	Lotery, Andrew
utue.personen.roh	Paudel, Nabin
utue.personen.roh	Ritter, Markus
utue.personen.roh	de la Rua, Enrique Rodriguez
utue.personen.roh	Rotenstreich, Ygal
utue.personen.roh	Sankila, Eeva-Marja
utue.personen.roh	Stingl, Katarina
utue.personen.roh	Van Denderen, Jacqueline
utue.personen.roh	Pungor, Katalin
dcterms.isPartOf.ZSTitelID	Eye	de_DE
dcterms.isPartOf.ZS-Issue	3	de_DE
dcterms.isPartOf.ZS-Volume	39	de_DE
utue.fakultaet	04 Medizinische Fakultät	de_DE