Framework for Multistakeholder Patient Registries in the Field of Rare Diseases

Schoenmakers, Daphne H.; van den Berg, Sibren; Timmers, Lonneke; Adang, Laura A.; Baumer, Tobias; Bosch, Annet; van de Casteele, Marc; Datema, Mareen R.; Dekker, Hanka; Donnelly, Conan; Driessens, Mariette H. E.; Graessner, Holm; Greger, Valerie; Haddad, Tala; Hoglinger, Gunter U.; van den Hout, Hannerieke; Jonker, Carla; Langeveld, Mirjam; Lambert, Laurie J.; Neacy, Eileen; Nieuwland, Marc; Klockgether, Thomas; van der Knaap, Marjo S.; Papadopoulou, Andri; Plueschke, Kelly; van Rijn, Sanne; Rosenberg, Noa; Saunier-Vivar, Elise F.; Vieira, Bruna dos Santos; Hollak, Carla E. M.; Goettsch, Wim G.; Wolf, Nicole I.

dc.contributor.author	Graessner, Holm
dc.date.accessioned	2024-11-19T09:18:11Z
dc.date.available	2024-11-19T09:18:11Z
dc.date.issued	2024
dc.identifier.issn	0028-3878
dc.identifier.uri	http://hdl.handle.net/10900/158963
dc.language.iso	en	de_DE
dc.publisher	Philadelphia : Lippincott Williams & Wilkins	de_DE
dc.relation.uri	http://dx.doi.org/10.1212/WNL.0000000000209743	de_DE
dc.subject.ddc	610	de_DE
dc.title	Framework for Multistakeholder Patient Registries in the Field of Rare Diseases	de_DE
dc.type	Article	de_DE
utue.quellen.id	20241001000000_00054
utue.personen.roh	Schoenmakers, Daphne H.
utue.personen.roh	van den Berg, Sibren
utue.personen.roh	Timmers, Lonneke
utue.personen.roh	Adang, Laura A.
utue.personen.roh	Baumer, Tobias
utue.personen.roh	Bosch, Annet
utue.personen.roh	van de Casteele, Marc
utue.personen.roh	Datema, Mareen R.
utue.personen.roh	Dekker, Hanka
utue.personen.roh	Donnelly, Conan
utue.personen.roh	Driessens, Mariette H. E.
utue.personen.roh	Graessner, Holm
utue.personen.roh	Greger, Valerie
utue.personen.roh	Haddad, Tala
utue.personen.roh	Hoglinger, Gunter U.
utue.personen.roh	van den Hout, Hannerieke
utue.personen.roh	Jonker, Carla
utue.personen.roh	Langeveld, Mirjam
utue.personen.roh	Lambert, Laurie J.
utue.personen.roh	Neacy, Eileen
utue.personen.roh	Nieuwland, Marc
utue.personen.roh	Klockgether, Thomas
utue.personen.roh	van der Knaap, Marjo S.
utue.personen.roh	Papadopoulou, Andri
utue.personen.roh	Plueschke, Kelly
utue.personen.roh	van Rijn, Sanne
utue.personen.roh	Rosenberg, Noa
utue.personen.roh	Saunier-Vivar, Elise F.
utue.personen.roh	Vieira, Bruna dos Santos
utue.personen.roh	Hollak, Carla E. M.
utue.personen.roh	Goettsch, Wim G.
utue.personen.roh	Wolf, Nicole I.
dcterms.isPartOf.ZSTitelID	Neurology	de_DE
dcterms.isPartOf.ZS-Issue	Article e209743	de_DE
dcterms.isPartOf.ZS-Volume	103 (6)	de_DE
utue.fakultaet	04 Medizinische Fakultät	de_DE